For parents, caregivers, nurses, child life teams, and family-support advocates
Parent & Caregiver Resource Hub
Medical days can feel big for little hearts. Benny & Penny Adventures helps families explain common pediatric medical experiences in gentle, age-appropriate language while building comfort, coping, and confidence.
These guides are educational and supportive, but they are not a replacement for medical advice, diagnosis, treatment, emergency care, or instructions from your child's healthcare team.
Always follow the care plan from your child's doctor, nurse, pharmacist, home infusion company, hospital, child life specialist, or emergency medical team. If your child is having a medical emergency, call emergency services immediately.
For emotional crisis support in the United States, call or text 988 or use the 988 Lifeline chat.
Start here
How to prepare your child for a medical day
Be honest, but gentle
Children usually cope better when caregivers use simple, truthful words. Instead of promising that something will not hurt, prepare them for what they may feel and remind them they will not be alone.
“You may feel a quick pinch, pressure, cold, or noise. I will stay with you and help you breathe.”
Give your child a job
A small job gives children something they can control. Their job might be holding Benny Bear, belly breathing, counting, choosing music, looking away, or squeezing a hand.
“Your job is to hold Benny, keep your body still, and take slow belly breaths with me.”
Offer small, real choices
Good choices are safe choices: lap or chair, look or look away, count or listen to music, Benny in the left hand or right hand. Avoid asking if they want to do a medically necessary procedure.
“Do you want to sit on my lap or sit next to me while we count together?”
Ask for child life support
Child life specialists help children and families cope with illness, injury, disability, medical tests, hospital stays, and procedures using preparation, play, coping plans, and developmentally appropriate teaching.
“Is a child life specialist available to help us make a coping plan?”
Talk-to-your-child guides
A simple script you can use before any procedure
Simple words to use
“The nurses and doctors are helping your body. Some parts may feel strange, loud, cold, tight, or uncomfortable, but you will not be alone. We will make a plan together.”
Your child may see
Nurses, doctors, or EMS helpers
Gloves, masks, gowns, and clean supplies
Tubing, tape, syringes, stickers, or monitors
A hospital bed, chair, scanner, or exam table
Your child may feel
Nervous or curious
Brave and scared at the same time
A pinch, pressure, cold feeling, loud sound, or tight band
Tired, frustrated, or ready for a break
Build a comfort plan
Before the visit, choose one item from each category and tell your child what their job will be.
✓ Comfort object
✓ Distraction activity
✓ Breathing plan
✓ Parent or caregiver phrase
✓ Small reward or calm activity afterward
Procedure prep by book
Book-by-book parent guides
Book 1 · Cover-ready
Benny & Penny’s Home Infusion Day
Topic: Home infusions
Help your child understand that some medicines can come to them at home with a nurse or trained caregiver, clean supplies, tubing, a pump or IV setup, vital signs, waiting time, and comfort routines.
“Today your medicine comes to you at home. The nurse will bring clean supplies and help your body get the medicine it needs. We can read, rest, watch a show, or hold Benny while the medicine goes in.”
Helping Your Child Feel Safe During Home Infusion
What parents can prepare
Create a clean, calm space for supplies.
Choose a comfort spot for your child.
Ask about snacks, drinks, and activity limits.
Keep allergies, medications, and emergency contacts nearby.
Write down questions for the nurse, doctor, or pharmacy.
Help children understand that a port is a small helper under the skin that can give medicine, fluids, or labs with fewer repeated pokes.
“Your port is a special helper under your skin. The nurse will clean the area and use a small needle to wake up the port so your medicine can go in. You can hold Benny, take big breaths, and choose something fun to watch.”
Preparing Your Child for Port Access
What parents can prepare
Ask whether numbing cream is recommended and when to apply it.
Choose clothing that allows access to the port area.
Prepare your child for masks, cleaning, sterile supplies, tape, and tubing.
Make a look-or-look-away plan before the appointment.
Help children understand that a PICC line is a special tube used for longer-term medicine, fluids, nutrition, or blood draws, and that keeping it clean and safe matters.
“A PICC line is a special tube that helps your body get medicine without needing a new poke every time. We keep it clean and safe, like a special helper for your treatment.”
Helping Your Child Understand a PICC Line
What parents can prepare
Ask how to protect the line during dressing, bathing, sleep, school, and play.
Ask what symptoms need urgent attention.
Learn who to call if the dressing becomes wet, loose, dirty, or if the line is pulled.
Keep supplies organized as instructed by the care team.
Teach your child not to pull, twist, or play with the line.
Help children understand that some medicine goes into the soft layer under the skin instead of into a vein, often with a small needle or infusion set, tape, tubing, and a slower routine.
“This medicine goes under the skin, where your body can slowly drink it in. You may feel a pinch or pressure, and then we can help your body relax while the medicine works.”
Explaining Subcutaneous Infusions in Kid-Friendly Words
What parents can prepare
Ask which body area will be used.
Ask what your child may feel during and after the infusion.
Ask how much swelling, redness, soreness, or pressure is expected.
Ask when to call the care team.
Use distraction, breathing, comfort positioning, and a calm reward afterward.
Help children understand that central lines and special IV lines can give medicine, fluids, nutrition, blood products, or allow blood draws when care is ongoing.
“This special line helps your medicine get where it needs to go. We keep it clean, safe, and covered so it can keep helping your body.”
Understanding Central Lines and Special IV Lines
What parents can prepare
Ask what type of line your child has.
Ask what activities are safe or restricted.
Ask how to protect the line during bath time, sleep, school, and play.
Ask about signs of infection or line problems.
Ask who to call urgently if the line is pulled, damaged, wet, or dirty.
Prepare children for a blood draw with honest, simple words about the tourniquet, cleaning, quick poke, tubes, bandage, and comfort plan.
“The lab helper needs a small amount of blood to learn more about your body. You may feel a tight squeeze on your arm and a quick pinch. Your job is to hold still, breathe, and squeeze my hand or Benny.”
Help children understand that an MRI is a camera that takes pictures inside the body, and prepare them for loud sounds, lying still, headphones, the scanner bed, and possible IV contrast or sedation.
“The MRI is a big camera that takes pictures of the inside of your body. It makes loud knocking and tapping sounds, but it does not hurt. Your job is to stay as still as a statue while the camera works.”
Preparing Your Child for an MRI Scan
What parents can prepare
Ask whether a preparation video, mock MRI, or child life support is available.
Practice lying still at home.
Prepare for loud sounds with headphones or ear protection.
Ask whether contrast, IV placement, or sedation may be needed.
Help children understand that a hospital stay means sleeping somewhere new so the care team can help their body, check vitals, use monitors, give medicine, and keep them safe.
“Tonight we are having a hospital sleepover so the doctors and nurses can help your body. The room may look different from home, but I will help you feel safe. We can bring things that remind you of home.”
Helping Your Child Through a Hospital Stay
What parents can prepare
Bring comfort items if allowed.
Ask about parent sleeping arrangements, meals, visiting, quiet hours, and sibling rules.
Keep a notebook of questions, names, medications, and updates.
Ask about child life, social work, spiritual care, and interpreter services.
Plan a familiar bedtime routine as much as possible.
Help families explain that ambulances are used when a child needs medical help quickly or safely during transport, and prepare children for lights, sirens, straps, monitors, oxygen, and EMS helpers.
“The ambulance helpers are here to take care of you and get you to the hospital safely. They may use lights, sounds, straps, stickers, or a mask to help your body. I will stay as close as the helpers say is safe.”
Preparing for Emergency Transport and Ambulance Rides
What parents can prepare
Keep a written medical summary available.
Keep medication, allergy, insurance, and emergency contact information accessible.
Pack comfort items when time allows.
Stay calm and give clear information to EMS.
Follow EMS instructions about where caregivers can safely sit.
Help children understand surgery day in calm, truthful language, including check-in, waiting, vitals, gowns, anesthesia, separation, recovery, comfort, and going home or staying overnight.
“The doctors are going to help fix something inside your body. You will get sleepy medicine so you do not feel the surgery. When you wake up, I will be close by and the nurses will help keep you comfortable.”
Talking to Your Child About Surgery Day
What parents can prepare
Ask what words to use for the specific surgery.
Ask when to stop food, drinks, or medicines.
Ask who can stay with your child before and after surgery.
Ask whether child life preparation is available.
Ask about anesthesia, pain control, recovery, and discharge instructions.
Small tools that can make big medical moments feel safer
Comfort items
Stuffed animal
Blanket
Favorite book
Headphones
Tablet or music
Small toy
Fidget item
Family photo
Sensory item
Coping tools
Belly breathing
Counting
Guided imagery
Watching a show
Music
Squeezing a hand or stress ball
Looking away
Comfort positioning
Medical play before the visit
Calm phrase bank
You are safe.
I am right here.
Your job is to breathe slowly.
You can be scared and brave at the same time.
This part is hard, and it will not last forever.
The nurse is helping your body.
Let us count together.
Benny is staying with you.
Phrases to avoid
Do not cry.
Be a big kid.
It will not hurt, when it may hurt.
The nurse will give you a shot if you do not behave.
You are fine, when your child is clearly upset.
This is nothing.
Questions to ask
Questions parents can ask the care team
Before the appointment
What should I tell my child before we arrive?
What words do you recommend using for this procedure?
Is there a child life specialist available?
Can we use numbing cream or other pain-reducing options?
Can my child bring a comfort item?
Can my child sit on my lap or use comfort positioning?
How long should the appointment take?
Are there eating, drinking, medication, or activity restrictions?
During the appointment
Can you explain each step before you do it?
Can we pause for a breathing break if medically safe?
Can my child choose whether to look or look away?
Can we use distraction?
Can we reduce the number of people in the room if my child is overwhelmed?
After the appointment
What symptoms are expected?
What symptoms are not normal?
Who do we call during business hours?
Who do we call after hours?
When should we go to urgent care or the emergency department?
Are there activity restrictions after this procedure?
What should school, daycare, or other caregivers know?
Financial and practical help
When medical care becomes financially overwhelming
Eligibility varies by diagnosis, income, insurance, state, age, and program funding. Families should contact each organization directly and also ask the hospital social worker, case manager, or clinic team for local support.
Start with your child’s care team
Ask for the hospital social worker, case manager, financial counselor, insurance authorization team, nurse navigator, home infusion pharmacy support team, or family resource center.
Some nonprofit programs offer case management, copay assistance, medication cost help, financial aid funds, disease-specific assistance, or transportation support.
Families who must travel for pediatric care may be able to ask hospitals about lodging, travel help, transportation grants, and local family-support programs.
Children may feel anxious before procedures, worried about pain, or frightened by medical equipment. Caregivers may feel overwhelmed, exhausted, financially stressed, or emotionally drained. Support is available for the whole family.
Medical trauma and procedure stress
Medical experiences can feel frightening for children and caregivers. Support is available when pain, serious illness, procedures, hospitalization, or treatment experiences feel overwhelming.
Some families need more than medical preparation. If a child or caregiver is experiencing abuse, neglect, unsafe caregiving, domestic violence exposure, exploitation, or fear at home, support is available. If a child is in immediate danger, call emergency services.
Children’s Advocacy Centers
Children’s Advocacy Centers coordinate child-focused services for children and families impacted by suspected abuse, including advocacy, therapy, medical exams, forensic interviews, and coordination with protective and legal systems.
If a child is in immediate danger, call emergency services. For suspected abuse or neglect, families and professionals can use official state and national reporting resources.
Children with chronic illness, medical devices, infusions, surgery recovery, frequent appointments, fatigue, pain, or anxiety may need a 504 plan, IEP evaluation, school health plan, medication plan, absence plan, activity restrictions, or emergency action plan.
The resources listed on this page are provided for educational and family-support purposes only. Inclusion of a resource does not mean endorsement, and eligibility for financial, insurance, lodging, school, or advocacy programs may vary by diagnosis, state, income, insurance status, age, and program funding. Families should contact each organization directly and speak with their child's healthcare team, hospital social worker, or case manager for guidance specific to their child's needs.